All Articles

  • All
  • All Articles
  • Handouts
  • Parents
  • Professionals
  • Self Advocates
  • Sexual Rights
  • Teaching Tools
  • Topics

Listening to Self-Advocates Voices

Being accepted for who you are and being in relationships has many benefits. Yet, people with developmental disabilities face barriers in achieving acceptance and building friendships and romantic sexual relationships that they desire because of restrictions, lack of control, and shameful, negative messages. The article, Restrictions, Power, Companionship, and Intimacy: A Metasynthesis of People with Intellectual Disability Speaking About Sex and Relationships, by Rhonda S. Black and Rebecca R. Kammes, explores the voices of people with intellectual and developmental disabilities (I/DD). 

Combining the results of 16 qualitative studies, 271 participants with intellectual disability were interviewed individually or in focus groups about their feelings and experiences regarding intimate relationships. From these studies, two competing themes emerged: control and desire. People with I/DD have desires, and family, caretakers, and organizations tend to want control of those desires either because they don’t believe these desires exist or they want to protect individuals. These competing themes are what put people with I/DD at risk. Continue Reading Listening to Self-Advocates Voices

Listening to Self-Advocates Voices Continue Reading →

Nothing About Us Without Us

I remember the day Karen Topper, Executive Director of Green Mountain Self Advocates, asked, “Can we create a sexuality education curriculum where people with developmental disabilities are teachers and are actively involved in creating this educational tool?” This startling statement pushed my thinking. My usual thoughts were that I and other professionals would create a curriculum, and we would be the teachers, not people with disabilities. And then, I started to imagine, and now, I ask you to imagine… Continue Reading Nothing About Us Without Us

Nothing About Us Without Us Continue Reading →

Self-Advocates Speak Up About Sex

Members of Green Mountain Self-Advocates in Vermont held a discussion group about sexuality to share their thoughts and experiences. Here are their candid responses to a number of questions about the messages they received about sexuality over the years and why they think sexuality education is important. 

This is a record of the conversation as it occurred. In some places, they respond to one another, as well as to the questions. Their real names have not been used at their request. Continue Reading Self-Advocates Speak Up About Sex

Self-Advocates Speak Up About Sex Continue Reading →

Sexual Rights – Pleasure

As a society, we have a difficult time discussing sexuality and relationships in general, but when the topic of the right to sexual pleasure is talked about, some people can feel really uncomfortable. Let’s back up a bit and focus on the word pleasure. Do we as a society encourage pleasurable experiences? We often feel guilty or undeserving of pleasure, but why? Not only do we get messages about sexuality as a negative, but also pleasure in general as negative, all work and no play. We need to change that because learning what gives us pleasure and not just sexual pleasure helps us all live fulfilling and satisfying lives.  Continue Reading Sexual Rights – Pleasure

Sexual Rights – Pleasure Continue Reading →

Sexual Rights: Are They Honored or Taken Away?

I want to explore the topic of sexual rights. There are many lists online of what sexual rights are, but what I found most useful was this Sexual Rights Statement that was developed by the Sex Education Implementation Oversight Committee in their efforts to support implementation of the new Illinois law: Public Act 101-0506. 

The committee (including self-advocates) compiled what they believe are the rights, and then the self-advocates and the Illinois Self-Advocacy Alliance (https://selfadvocacyalliance.org/) created Easier-To-Understand Sexual Rights statements that fit under the various rights. They have also been translated into Spanish, Simplified Chinese, and Polish (the most common languages other than English, which are spoken in Illinois). Continue Reading Sexual Rights: Are They Honored or Taken Away?

Sexual Rights: Are They Honored or Taken Away? Continue Reading →

Sexual Rights: Equity Versus Equality: There is a Big Difference

Have you ever thought about the difference between the words equity and equality? The word equality means everyone gets the same thing, but unfortunately, equality doesn’t always work for everyone. In the top image, everyone is given the same bicycle. We’ll call this the “equality bike.” When a person who uses a wheelchair receives what is equal, they can’t use it, and they just sit next to the equality bicycle. Furthermore, the tall person is too big, and the little person is too small and can barely touch the pedals. The equality bike only works for one of the people.  Continue Reading Sexual Rights: Equity Versus Equality: There is a Big Difference

Sexual Rights: Equity Versus Equality: There is a Big Difference Continue Reading →

Sexual Rights: Knowledge

We know that knowledge is power and ignorance is NOT bliss. We all need knowledge to make informed choices, but when it comes to sex and sexual relationships, people with disabilities are given the message that they don’t need this information; this isn’t for them. But we all have the right to learn and become informed; when we aren’t, we may suffer. 

This right is very specific about what knowledge people with intellectual and developmental disabilities (I/DD) want and need. They are asking people to go beyond friendship, meeting partners, and wondering what a healthy relationship is. They are asking for access to information about sex, such as “what is sex?” And they are wondering how to have a safe and healthy sexual relationship and reproductive health. Continue Reading Sexual Rights: Knowledge

Sexual Rights: Knowledge Continue Reading →

Sexual Rights: Privacy

Privacy is a human right. Health Insurance Portability and Accountability Act (HIPPA) laws give us this right regarding our health information, but when people with intellectual and developmental disabilities (I/DD) receive services, others, or even ourselves, may forget about this right. Self-advocates state that if anything is going on in their lives regarding sexuality, everyone knows about it and talks about it. If they mention wanting privacy with a partner, “a team meeting is called,” and they suddenly have no privacy regarding their personal information. Continue Reading Sexual Rights: Privacy

Sexual Rights: Privacy Continue Reading →

Sexual Rights: Safety, Empowering Self-Advocates to Keep Themselves Safe

Many people with developmental disabilities are not safe from physical or sexual abuse. One of the reasons this is true is because people think of them as vulnerable and uneducated. Unfortunately, many of them are uneducated due to myths about whether people with intellectual and developmental disabilities (I/DD) are to be considered sexual people with the same rights as people who don’t have disabilities. 

People are set up to be unsafe when knowledge and skills are withheld. People with disabilities are not asking us to protect them; they are asking for knowledge and skills to keep themselves safe. They are saying they have the right to have what they need to protect themselves – education.  Continue Reading Sexual Rights: Safety, Empowering Self-Advocates to Keep Themselves Safe

Sexual Rights: Safety, Empowering Self-Advocates to Keep Themselves Safe Continue Reading →

Supporting LGBTQ+ People with Intellectual and Developmental Disabilities

Hello! I’m Pauline Bosma. I grew up in a small country town in Massachusetts. When I was young, I was considered a boy with slight mental retardation. In addition to a disability label, at the age of four, I also started to have questions about my gender. I did not know how to express these feelings, so I kept them hidden. When I got older, I continued to struggle to figure out who I was, and it was turmoil. Dressing as a man made me feel stressed, but if I was getting dressed up as a woman, I felt relaxed. I would go out to buy women’s clothes, and I would wear them in private, but then I would feel ashamed and throw them away. With time and support, I finally came to accept that this was a gift that God gave me: in my brain, I was feminine and a woman. Continue Reading Supporting LGBTQ+ People with Intellectual and Developmental Disabilities

Supporting LGBTQ+ People with Intellectual and Developmental Disabilities Continue Reading →

Toolkit : Sexual Assault Awareness for People with Developmental Disabilities

Individuals with developmental disabilities are sexually assaulted at seven times the rate of people without disabilities. As always, our team at Elevatus Training believes that education is the first line of defense in preventing sexual abuse. With this in mind, we aim to support all your training needs, and that’s why we have created a toolkit filled with educational articles and resources to support you. Together, let’s raise awareness and educate people about this issue! Continue Reading Toolkit : Sexual Assault Awareness for People with Developmental Disabilities

Toolkit : Sexual Assault Awareness for People with Developmental Disabilities Continue Reading →

Victim or Offender? People with I/DD Accused of Sex Offending Behaviors

People with I/DD are more likely to be arrested, convicted, sentenced to prison, and then victimized in prison. Once in the criminal justice system, these individuals are less likely to receive probation or parole and tend to serve longer sentences due to an inability to understand or adapt to prison rules. Although we do not have specific data on the numbers of sexual crimes, you may know of cases or stories where someone with I/DD texts a sexual photo to someone, exposes themselves, downloads child pornography, follows someone around the mall, or does not get consent for sexual activity. Let us explore why this is happening.

Continue Reading Victim or Offender? People with I/DD Accused of Sex Offending Behaviors

Victim or Offender? People with I/DD Accused of Sex Offending Behaviors Continue Reading →

Shopping Cart
Scroll to Top
Skip to content